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Psychosocial and Biological Markers of Daily Lives of Midlife Parents of Children with Disabilities*

Seltzer, Marsha Mailick; Almeida, David M.; Greenberg, Jan S.; Savla, Jyoti; Stawski, Robert S.; Hong, Jinkuk; Taylor, Julie Lounds
Fonte: PubMed Publicador: PubMed
Tipo: Artigo de Revista Científica
Publicado em /03/2009 Português
Relevância na Pesquisa
109.89119%
Using daily telephone interviews, 82 midlife parents (mean age = 57.4) of children with disabilities (mean age = 29.9) were compared with a closely matched sample of unaffected parents (n = 82) to elucidate the daily experience of nonnormative parenting. In addition, salivary cortisol samples were obtained to examine whether parents of children with disabilities had dysregulated diurnal rhythms and the extent to which the amount of time spent with children was associated with divergent patterns of cortisol expression. We found that parents of children with disabilities had similar patterns of daily time use and similar likelihood of positive daily events as the comparison group, but they had elevated levels of stress, negative affect, and physical symptoms, all reported on a daily basis. In addition, their diurnal rhythm of cortisol expression differed significantly from the comparison group, a pattern that was strongest for parents of children with disabilities on days when they spent more time with their children.

Cognitive Enhancement: Perceptions Among Parents of Children with Disabilities

Ball, Natalie; Wolbring, Gregor
Fonte: Springer Netherlands Publicador: Springer Netherlands
Tipo: Artigo de Revista Científica
Português
Relevância na Pesquisa
98.87327%
Cognitive enhancement is an increasingly discussed topic and policy suggestions have been put forward. We present here empirical data of views of parents of children with and without cognitive disabilities. Analysis of the interviews revealed six primary overarching themes: meanings of health and treatment; the role of medicine; harm; the ‘good’ parent; normality and self-perception; and ability. Interestingly none of the parents used the term ethics and only one parent used the term moral twice.

Depression and chronic health conditions in parents of children with and without developmental disabilities: the growing up in Ireland cohort study

Gallagher, Stephen; Hannigan, Ailish
Fonte: Elsevier Publicador: Elsevier
Tipo: info:eu-repo/semantics/article; all_ul_research; ul_published_reviewed
Português
Relevância na Pesquisa
100.07203%
peer-reviewed; Epidemiological evidence suggests that poor physical health and depression are highly comorbid. To date, however, no study has considered whether depression in parents caring for children with developmental disabilities is partly driven by poor physical health. Using data from the Growing Up in Ireland national cohort study (2006 to date), 627 parents of children with developmental disabilities were compared with 7941 parents of typically developing children on scores from the Centre for Epidemiological Depression Scale, chronic health conditions, socio-demographic and child behavioural characteristics. Having a child with disabilities was associated with a higher risk of depression (odds ratio (OR) = 1.83, 95% confidence interval (CI): 1.43, 2.35) compared to parents of typically developing children. Adjusting for the presence of chronic health conditions accounted for some of this excess risk (OR = 1.77,95% Cl: 1.38, 2.27). The association between having a child with disabilities and increased risk of depression was explained, however, by adjusting for the child problem behaviours (OR = 1.07, 95% Cl: 0.81, 1.43). This study has confirmed, in a population-based sample, the high risk of depression in parents caring for children with developmental disabilities after adjusting for the presence of a chronic health condition. Importantly...

Predictors of psychological morbidity in parents of children with intellectual disabilities

Gallagher, Stephen; Phillips, Anna C; Oliver, Christopher; Carroll, Douglas
Fonte: Oxford University Press Publicador: Oxford University Press
Tipo: info:eu-repo/semantics/article; all_ul_research; ul_published_reviewed
Português
Relevância na Pesquisa
129.00914%
peer-reviewed; This study examined predictors of excess psychological morbidity in parents of children with intellectual disabilities.; ACCEPTED; peer-reviewed

Caregiving for children with developmental disabilities is associated with a poor antibody response to influenza vaccination

Gallagher, Stephen; Phillips, Anna C; Drayson, Mark T; Carroll, Douglas
Fonte: Lippincott, Williams & Wilins Publicador: Lippincott, Williams & Wilins
Tipo: info:eu-repo/semantics/article; all_ul_research; ul_published_reviewed
Português
Relevância na Pesquisa
89.85142%
peer-reviewed; Objective: Older spousal caregivers of dementia patients have been found to show a relatively poor antibody response to medical vaccination. The present case control study compared the antibody responses to vaccination of younger parental caregivers of children with developmental disabilities and parents of typically developing children. Methods: At baseline assessment, 32 parents of children with developmental disabilities and 29 parents of typically developing children completed standard measures of perceived stress and child problem behaviours. They also provided a blood sample and were then vaccinated with the thymus-dependent trivalent influenza vaccine. Further blood samples were taken at 1- and 6-month follow-ups. Results: Relative to parents of typically developing children (mean titre = 458, SD = 155.7 at 1-month and mean titre = 265, SD = 483.0 at 6-month followup) caregivers (mean titre = 219, SD = 528.4 at 1-month and 86, SD = 55.0 at 6- month) mounted a poorer antibody response than controls to the B/Malaysia strain of the vaccine. It was those caregivers reporting more child problem behaviours that tended to show the weakest antibody response. Conclusion: The negative impact of caregiving on antibody response to vaccination would not appear to be restricted to older spousal caregivers...

The Educational Resilience of Children in Urban Squatter Settlements of Kathmandu

World Bank
Fonte: Washington, DC Publicador: Washington, DC
Português
Relevância na Pesquisa
89.32969%
Nepal is a partner to the international commitment to achieve the goals of Education for All (EFA) and Millennium Development Goals (MDGs) by 2015. Efforts have been made through the EFA National Plan of Action 2003-2015 and School Sector Reform Program (SSRP) to achieve the EFA goals and the MDGs. Over the last few years, Nepal has demonstrated progress in some of the indicators related to children s participation in school. The Department of Education (2012) has reported that the primary education Net Enrolment Rate (NER), Grade 1 Net Intake Rate (NIR), Grade 5 Survival Rate (SR), and Dropout Rate (DR), are 95.3, 91.2, 84.1, and 5.2 percent respectively. However, it will be difficult to close the bigger gaps of 4.7, 8.8, 15.9, and 5.2 percent of the NER, NIR, SR, and DR respectively by 2015. The challenge lies in the large number of school-aged children who do not attend formal primary schooling. Likewise, a significant number of students repeat grades and those promoted may have low achievement. Realizing this bleak educational scenario...

Effects of stressors, internal resources, and coping stragegies on the adaptation of families of children with a mental handicap

Paez, Doris, 1964-
Fonte: Universidade da Flórida Publicador: Universidade da Flórida
Tipo: Artigo de Revista Científica Formato: ix, 130 leaves : ill. ; 29 cm.
Publicado em //1992 Português
Relevância na Pesquisa
99.32421%
(Thesis) Thesis (Ph. D.)--University of Florida, 1992.; (Bibliography) Includes bibliographical references (leaves 119-128).; Typescript.; Vita.; (Statement of Responsibility) by Doris Paez.

"Time to care": relationship between time spent caring for pre-school children with developmental delays and psychological, social and physical well-being of parents.

Crettenden, Angela D.
Fonte: Universidade de Adelaide Publicador: Universidade de Adelaide
Tipo: Tese de Doutorado
Publicado em //2008 Português
Relevância na Pesquisa
130.30152%
Advances in medical technologies and changing philosophies of health care have led to a rapid increase in home-based care for children with disabilities. While there are cost savings for health services if children are cared for at home there are extensive additional demands on the time and resources of parents, particularly primary caregivers, who are usually mothers. Previous studies have shown that parents caring for children with disabilities experience considerable stress and increased rates of mental health problems. The present dissertation investigated the impact of caring on the daily lives of parents and in particular, a model proposing factors contributing to parental psychological, social and health outcomes. A preliminary qualitative study found time demands to be a core theme when discussing the consequences of caring, and when describing tasks of caring. A second, larger scale quantitative study focused on assessing the time constraints facing parents of children with developmental disabilities. Participants were 95 primary caregivers (mostly mothers) and 65 secondary caregivers (mostly fathers) of children (mean age = 4½ years) with developmental disabilities who were clients of the Early Childhood Service, part of Disability Services SA. Children‟s diagnoses included global developmental delay...

Parents of children with developmental disabilities report poorer physical health

Gallagher, Stephen; Whiteley, Jennifer; Shandley, L.; Dixon, K.; Lee, H
Fonte: University of Limerick Publicador: University of Limerick
Tipo: Conference item; all_ul_research; none
Português
Relevância na Pesquisa
109.75292%
non-peer-reviewed; Background: Older caregivers of patients with mental heath difficulties report poor physical health. This study examined whether younger parental caregivers of children with developmental disabilities would also report poor physical health. Methods: A cross-sectional between subjects design was used. Thirty-eight parents of children with developmental disabilities and 34 parents of typically developing children completed standard measures of perceived stress, social support, mastery and child problem behaviours. Results: ANOVA revealed that caregivers reported more physical health problems than controls (Mean = 52.5 + 12.24 vs 43.1 + 13.35; F (1, 70) = 9.62, p < .05). ANCOVA indicated that this appeared to be partly mediated by mastery and child problem behaviours. Conclusion: The negative impact of caregiving on self-report physical health is also evident in younger parents of children with developmental disabilities. The coping style of parents and the behavioural characteristics of the care recipients may be a key consideration in whether physical health is compromised in this context.

An analysis of Haitian parents' perceptions of their children with disabilities

Gregoire, Josee
Fonte: FIU Digital Commons Publicador: FIU Digital Commons
Tipo: Artigo de Revista Científica
Português
Relevância na Pesquisa
100.04299%
Parental involvement is an integral part of the educational system in the U.S. Yet, parents from non-mainstream racial/ethnic backgrounds have not fully grasped the nature of parental involvement expectations in the educational process and how these expectations may impact student achievement. The purpose of this study was to identify Haitian parents’ perceptions of their children with disabilities and the education these children were receiving. ^ Several authors have conducted studies on parents of children with disabilities to better gain an understanding of the level of their involvement with their children’s education, their perceptions of the children, and their views on the school system (Harry, 1992a, 1992b). ^ In this study, Haitian parents of children with disabilities were interviewed using an interview protocol. Through these interviews, this study explored 10 Haitian parents’ perceptions of their child with a disability, the education the child was receiving, their interaction with the school system, and how the disability had affected their relationship with their child and their involvement with the school.^ Findings of the present study revealed that these Haitian parents seldom disagreed with school personnel and did not seem to fully grasp the different methods available to address their concerns as parents of children with disabilities nor the role they were expected to play in the process. The majority did not have basic literacy skills in Creole or English. The parents in this study were overwhelmed by school written communication. ^ Additionally...

An Analysis of Haitian Parents' Perceptions of Their Children With Disabilities

Gregoire, Josee
Fonte: FIU Digital Commons Publicador: FIU Digital Commons
Tipo: Artigo de Revista Científica Formato: application/pdf
Português
Relevância na Pesquisa
90.04261%
Parental involvement is an integral part of the educational system in the U.S. Yet, parents from non-mainstream racial/ethnic backgrounds have not fully grasped the nature of parental involvement expectations in the educational process and how these expectations may impact student achievement. The purpose of this study was to identify Haitian parents’ perceptions of their children with disabilities and the education these children were receiving. Several authors have conducted studies on parents of children with disabilities to better gain an understanding of the level of their involvement with their children’s education, their perceptions of the children, and their views on the school system (Harry, 1992a, 1992b). In this study, Haitian parents of children with disabilities were interviewed using an interview protocol. Through these interviews, this study explored 10 Haitian parents’ perceptions of their child with a disability, the education the child was receiving, their interaction with the school system, and how the disability had affected their relationship with their child and their involvement with the school. Findings of the present study revealed that these Haitian parents seldom disagreed with school personnel and did not seem to fully grasp the different methods available to address their concerns as parents of children with disabilities nor the role they were expected to play in the process. The majority did not have basic literacy skills in Creole or English. The parents in this study were overwhelmed by school written communication. Additionally...

The Relative Risk of Divorce in Parents of Children with Developmental Disabilities: Impacts of Lifelong Parenting

Namkung, Eun Ha; Song, Jieun; Greenberg, Jan S.; Mailick, Marsha R.; Floyd, Frank J.
Fonte: PubMed Publicador: PubMed
Tipo: Artigo de Revista Científica
Publicado em /11/2015 Português
Relevância na Pesquisa
89.63489%
We examined prospectively the risk of divorce in 190 parents of children with developmental disabilities compared to 7,251 parents of children without disabilities based on a random sample drawn from the community and followed longitudinally for over 50 years. A significant interaction between the parental group status and number of children was found: In the comparison group, having a larger number of children was related to an increased risk of divorce, whereas the number of children did not increase divorce risk among parents of children with developmental disabilities.

Perception of parents of children with and without disabilities about teething disturbances and practices adopted

Prado,Alessandra Maia de Castro; Oliveira,Fabiana Sodré de; Abrão,Ludmilla de Melo; Novaes,Myrian Stella de Paiva; Prado,Thaís Thereza Basso
Fonte: Faculdade de Odontologia de Piracicaba - UNICAMP Publicador: Faculdade de Odontologia de Piracicaba - UNICAMP
Tipo: Artigo de Revista Científica Formato: text/html
Publicado em 01/06/2013 Português
Relevância na Pesquisa
99.90415%
AIM: To evaluate and compare the perception of parents of children with and without disabilities about the occurrence of local and systemic manifestations during the eruption of primary teeth and to investigate the parents' practices used to alleviate teething disturbances. METHODS: A cross-sectional study was conducted in a sample of parents of children without disabilities (GI) and parents of children with disabilities (GII) treated at a University Pediatric Dentistry Clinic. Data from GI and GII were collected using a structured questionnaire applied during an interview with the parents, and were analyzed using descriptive statistics. Mann-Whitney and Wilcoxon tests were employed and the level of significance was set at p<0.05. RESULTS: The questionnaires were filled out by 86 parents, being 45 in GI and 41 in GII. For GI, the most frequent local manifestations were edema around the tooth (84.44%) and increased suction (75.56%); and for GII were edema and erythema around the tooth (78.05% and 70.73%, respectively). The most frequent systemic manifestations, according to parents of both groups, were irritability and fever. There was no statistically significant difference between groups (p<0.05). It was observed that 46.66% and 68.3% of parents of GI and GII...

Child problem behaviours are associated with obesity in parents caring for children with developmental disabilities

Gallagher, Stephen; Hannigan, Ailish
Fonte: Elsevier Publicador: Elsevier
Tipo: info:eu-repo/semantics/article; all_ul_research; ul_published_reviewed
Português
Relevância na Pesquisa
89.96864%
peer-reviewed; Epidemiological evidence suggests that obesity and depression are highly co-morbid. In a national cohort study, we examined whether parents caring for children with disabilities were more likely to be classified as obese compared to parents of children without disabilities and if obesity was associated with depressive symptoms or child behaviour characteristics. Using data from the Growing Up in Ireland National Longitudinal Study of Children (2006 to date), 627 parents of children with developmental disabilities were compared with 7941 parents of typically developing children on objectively measured levels of obesity (body mass index >= 30 kg/m(2)), depression, health behaviours, chronic health conditions, socio-demographic and child behavioural characteristics. Parents of children with disabilities were more likely to be classified as obese compared to control parents (24.5% vs. 19.6%, p = 0.005, Cramer's V; ACCEPTED; peer-reviewed

Parental caregivers of children with developmental disabilities mount a poor antibody response to pneumococcal vaccination.

Gallagher, Stephen; Phillips, Anna C; Drayson, Mark T; Carroll, Douglas
Fonte: Elsevier Publicador: Elsevier
Tipo: info:eu-repo/semantics/article; all_ul_research; ul_published_reviewed
Português
Relevância na Pesquisa
99.802705%
peer-reviewed; In older populations, caregiving for a spouse with dementia has been associated with a poor antibody response to vaccination. The present study examined whether younger caregivers, specifically the parents of children with developmental disabilities, would also show a diminished antibody response to vaccination. At baseline assessment, 30 parents of children with developmental disabilities and 29 parents of typically developing children completed standard measures of depression, perceived stress, social support, caregiver burden, and child problem behaviours. They also provided a blood sample and were then vaccinated with a pneumococcal polysaccharide vaccine. Further blood samples were taken at 1- and 6-month follow-ups. Caregivers mounted a poorer antibody response to vaccination than control parents at both follow-ups. This effect withstood adjustment for a number of possible confounders and appeared to be, at least in part, mediated by child problem behaviours. The negative impact of caregiving on antibody response to vaccination is not restricted to older spousal caregivers, but is also evident in younger parents caring for children with developmental disabilities. The behavioural characteristics of the care recipients may be a key consideration in whether or not immunity is compromised in this context.; ACCEPTED; peer-reviewed

Adoption of Children With Disabilities: A Study With Adoptive Parents; Adopción de Niños con Discapacidad: Un Estudio de los Padres y Madres Adoptivos; Adoção de Crianças com Deficiência: Um Estudo com Pais e Mães Adotantes

Mozzi, Gisele De; Nuernberg, Adriano Henrique
Fonte: Universidade de São Paulo. Faculdade de Filosofia, Ciências e Letras de Ribeirão Preto Publicador: Universidade de São Paulo. Faculdade de Filosofia, Ciências e Letras de Ribeirão Preto
Tipo: info:eu-repo/semantics/article; info:eu-repo/semantics/publishedVersion; ; ; Formato: application/pdf
Publicado em 01/04/2016 Português
Relevância na Pesquisa
89.34982%
Taking into consideration the supremacy of a child's profile often chosen by adoptive parents, this study aimed to understand the adoption of children with disabilities from the perspective of adoptive parents who have experienced this practice. The participants were eleven adoptive families of disabled children, all of whom had knowledge about the health conditions of the adoptive children at the time of adoption. The instruments used were a semi-structured interview and a sociodemographic questionnaire. A content analysis of the results enabled an understanding of the influence of conceptions about disabilities on the formal adoption process, the construction of parenting through the practices of care, and the influence of care specificities for a disabled child on adoption processes. Finally, it can be concluded that the children's disabled condition is a constituent element in the adoption of these children, affecting both the legal processes and the experience of the adoptive families.; Dada la supremacía de un perfil de niño adoptivo frecuentemente escogido por los pretendientes, se tuvo como objetivo comprender la adopción de niños con deficiencia en la perspectiva de los padres adoptivos que vivieron esta práctica. Once familias adoptantes de niños con deficiencia...

Siblings of children with disabilities: The Needs and adjustment of today's nondisabled siblings

Carragher, Lynn
Fonte: Rochester Instituto de Tecnologia Publicador: Rochester Instituto de Tecnologia
Tipo: Tese de Doutorado
Português
Relevância na Pesquisa
108.65305%
This study examined the adjustment of nondisabled siblings of children with a disability. Factors such as family income and characteristics of the nondisabled child as they relate to psychological, behavioral, and academic functioning, and parents' perceptions regarding the needs of nondisabled siblings were explored. Specific attention was given to determining parents' interest in sibling support groups. Study participants consisted of 65 parents who had at least one child between the ages of 5 and 21 with a disability and at least one nondisabled child between. the ages of 5 and 18. The primary caregiver was asked to complete a 22 question Sibling Needs Assessment Survey as well as the rate the behavior of the nondisabled sibling on the Behavior Evaluation Scale-2 Home Version. Significant main effects were found for age and sex of the nondisabled sibling with respect to academic difficulties. More academic difficulties were reported when the nondisabled sibling was older than the child with a disability. In addition, males were rated as having significantly higher problems with school performance than, females. Family income was not found to have a significant effect on the psychological, behavioral, or academic functioning of the nondisabled siblings.

Reflections about attention to children with disabilities on the brazilian primary health care; Reflexões sobre a atenção às crianças com deficiência na atenção

Schaik, Evelien Emmy van; Souza, Camila Cristina Bortolozzo Ximenes de; Rocha, Eucenir Fredini
Fonte: Universidade de São Paulo. Faculdade de Medicina Publicador: Universidade de São Paulo. Faculdade de Medicina
Tipo: info:eu-repo/semantics/article; info:eu-repo/semantics/publishedVersion; ; ; ; ; ; Formato: application/pdf
Publicado em 19/12/2014 Português
Relevância na Pesquisa
109.41619%
Due to the people with disabilities growing number in Brazil, it is imperative to ensure the access to the Public Primary Health Care (PHC). This study, through research based on action, aimed to monitor and evaluate the development of a group of children with disabilities in a Basic Health Unit (BHU) in São Paulo, Brazil, in one year period. The project was coordinated by an Occupational Therapist. Data collection: bibliographical survey; participative observation; construction / application of a qualitative protocol to assess the children development; interviews with parents. By crossing data into a chronic descriptive narrative composition, they were analyzed using a specifi c theoretical approach. Results: 53 papers were selected in different databases; results show the built of support networks between parents; children developmental improvements; greater movement of such users in BHU; professional refl ection about the access of this population to PHC. Conclusion: It is possible to draw and execute rehabilitation actions which can go beyond the biomedical model in PHC. However, diffi culties and challenges will probably appear, due to the fact that there are deconstructions to be done regarding the tradition of special services for people with disabilities.; Dado o crescente número de pessoas com defi ciência no Brasil...

Diagnosis and its implications in the acceptance process of the child with disability: a qualitative study; Implicações do diagnóstico na aceitação da criança com deficiência: um estudo qualitativo

Camargo, Síglia Pimentel Hoher; UFRGS; Londero, Angélica Dotto; Universidade Federal de Santa Maria
Fonte: UFPR Publicador: UFPR
Tipo: info:eu-repo/semantics/article; info:eu-repo/semantics/publishedVersion; avaliado por pares; Formato: application/pdf
Publicado em 01/09/2009 Português
Relevância na Pesquisa
99.45706%
Quando nasce uma criança com deficiência, o discurso do profissional da saúde no momento do diagnóstico assume um papel importante na forma como os pais irão lidar com essa nova e indesejada situação de vida. O presente trabalho teve por meta verificar as implicações do modo como é dado o diagnóstico médico e as orientações aos pais de crianças com deficiência, no seu processo de aceitação. Os dados foram coletados através de entrevistas individuais com oito pais de crianças com deficiência. As entrevistas foram transcritas e submetidas à análise de conteúdo. As cinco categorias identificadas demonstram que o diagnóstico é um momento importante para o processo de aceitação da criança com deficiência e para sua inclusão na família e na sociedade.   Palavras-chave: saúde; diagnóstico; criança com deficiência.; When a child is born with a disability, the speech of the health professional at the moment of diagnosis has an important role in the way that parents deal with this new and unexpected life situation. This paper aimed to verify the implications of the way that the diagnosis is given and provide guidance to parents of children with disabilities in their acceptance process. Data were collected through individual interviews with eight parents of children with disabilities and submitted to a content analysis. The Five identified categories indicated that diagnosis was an important moment for the parent’s acceptance process and for the child’s inclusion in the family and society.   Keywords: health; diagnosis; children with disabilities.

Perception of parents of children with and without disabilities about teething disturbances and practices adopted

Prado, Alessandra Maia de Castro; Oliveira, Fabiana Sodré de; Abrão, Ludmilla de Melo
Fonte: UNICAMP/FOP Publicador: UNICAMP/FOP
Tipo: info:eu-repo/semantics/article; info:eu-repo/semantics/publishedVersion; ;
Publicado em 16/10/2015 Português
Relevância na Pesquisa
99.90415%
Aim: To evaluate and compare the perception of parents of children with and without disabilities about the occurrence of local and systemic manifestations during the eruption of primary teeth and to investigate the parents’ practices used to alleviate teething disturbances. Methods: A cross-sectional study was conducted in a sample of parents of children without disabilities (GI) and parents of children with disabilities (GII) treated at a University Pediatric Dentistry Clinic. Data from GI and GII were collected using a structured questionnaire applied during an interview with the parents, and were analyzed using descriptive statistics. Mann-Whitney and Wilcoxon tests were employed and the level of significance was set at p<0.05. Results: The questionnaires were filled out by 86 parents, being 45 in GI and 41 in GII. For GI, the most frequent local manifestations were edema around the tooth (84.44%) and increased suction (75.56%); and for GII were edema and erythema around the tooth (78.05% and 70.73%, respectively). The most frequent systemic manifestations, according to parents of both groups, were irritability and fever. There was no statistically significant difference between groups (p<0.05). It was observed that 46.66% and 68.3% of parents of GI and GII...